Posted in Events & Holidays

It’s beginning to look a lot like… the end of November

Its that time of year, people have started putting their Christmas decorations up and I excitedly point them out to William hoping to see some kind of flash of recognition or magic in his eyes but there is nothing, but that doesn’t mean it will always be this way and I cling to that. This is going to be Williams fifth Christmas which means as per our tradition it will be his fifth Christmas Mickey toy and this year, I will start the tradition for Little Miss.

I was always a self-confessed scrooge; Christmas was never like it was portrayed in the movies and it always fell short of my expectations. There was no snow on the ground, we didn’t have a house full of people, all happy and playing board games. Don’t get me wrong, as a child our Christmases were magical… ‘Santa’ would fill little stockings outside our bedroom doors, and I would excitedly run into H’s bedroom. ‘he’s been!’ I would scream and the excitement would begin.
We weren’t allowed downstairs until my mom had been to pick up big nanna so we would sit on the top step waiting to hear the car pull into the driveway.
‘Santa’ always delivered except if it was something noisy… like the Christmas of 92 when H was severely disappointed at not getting a Teenage Ninja Mutant Turtles whistle. Apparently, it was sold out, but mom and dad didn’t want something so noisy in the house so got her a ball instead haha🏀

I’m a weirdo and love giving presents to people, I love thinking about what I feel people will appreciate and putting thought and love into gifts and then seeing their faces when they open them. On the flip side and this definitely makes me a hypocrite, I am a terrible person to buy for, I hate receiving gifts and being expected to open them in front of people, purely because I cannot hide my reactions… my face always gives me away. My girlfriends and I do a Secret Santa every year and I flat out refuse to open mine, mainly because on Christmas day, I don’t really have a lot to open but also so that I can do it in private. Birthdays are the same too. I am super grateful to anyone that thinks enough of me and is generous enough to buy a gift, but I like the privacy of opening them alone.

William’s Christmases aren’t like the movies, or the ones I had as a kid, but we adapt to suit the kind of Christmas he needs, and we try to make it as special for him as he can handle. Separation can be hard as it usually involves two Christmases and two birthdays, but William can only just cope with one. Thankfully me and his dad are on the same page and can make plans which suit William without it turning into an all-out war and I’m grateful for that.

Last year despite the covid restrictions, William had what I can only describe as our first peaceful Christmas; everything was done at his pace… there was no rushing and no expectations. Peace and joy for all.

My tree is not yet up as I don’t know how William will handle it due to his pica and his obsessive need to eat objects, for the last few years I’ve ran interference but it’s not getting any easier. Putting my tree up is magical to me; it’s the same tree we had as children, so it brings back many happy memories for me putting on all the old but very loved ornaments and seeing them incorporated with our own newer ones.  I think my favourite is a little green one which is half open and contains the three wise men, I mean… I think they are the tree wise men, but they are so worn that they could be miniature figures of the Bee Gees. Staying alive on my Christmas tree 😂

My stand-alone ornaments have long been abandoned and are currently sat gathering dust in my spare bedroom/office, I think I may donate them to a charity shop as I imagine they will sell this time of year and I often like to take William’s old clothes and toys in for them to be sold for a good purpose and go to a good home. I used to try and sell things on Facebook but it’s not worth it as everyone wants something for nothing whether they can afford it or not.

I guess what I really want to say to you all, is enjoy the up coming festive season in any which way you decide to celebrate it.

All my love 😘 M.x

Posted in Events & Holidays

Its our birthday! 🎈

And just like that, we turn 2 (well yesterday to be precise) 😊

It’s been a crazy 2 years, we’ve been read in 59 countries, we have 3 social media pages (links below), our story has been featured in online magazines, newspapers and other peoples blogs, there have been many ups and downs but sharing it with you all has made things so much easier and I am grateful to each and every one of our readers.

WORLD DOMINATION MAP

Here are the top 10 countries in which we are read in

  • United Kingdom 🇬🇧
  • USA 🇺🇸
  • Australia 🇦🇺
  • China 🇨🇳
  • Malta 🇲🇹
  • Ireland 🇮🇪
  • Spain 🇪🇸
  • Germany 🇩🇪
  • Canada 🇨🇦
  • Cambodia 🇰🇭

I think the best way to end our little celebratory post is to share our most popular posts in the last 2 years.

all our love 😘 M.x

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Posted in Emotions

Inclusion

Let’s talk about inclusion… as an adult, I can honestly say that I genuinely like my own company. It’s much harder to end up in an argument although not impossible. 🤣

We worry about our kids been included in the playground, getting invites for parties and things of the like but as a parent of a child with special needs inclusion is something we worry about for everything. Will I be able to navigate his adaptive stroller around that shop, do the disabled toilets have a suitable changing facility? Will that cafe or restaurant understand that he may be noisy and throw his food?

I feel uncomfortable in situations in which it is obvious that William is uncomfortable, it’s mainly because I still worry about what other people think and I’m not sure that will get go away but I hope it does.

I recently attended an event, or a gathering of sorts and I had the strangest experience, something that I have never experienced before; total all-encompassing inclusion and understanding. It sounds really strange to say this, but I have taken William to places that should have been safe for us, but they weren’t. I was terrified of doing a first new place/event, as I usually am because let’s face it, I can be the queen of anxiety and overthinking and believe me I had been doing a lot of it in the run up.  What if I William had a meltdown? What if people didn’t understand?

I panic about going to my parents or big nanna’s and they’re regular occurrences so its natural that I would panic about somewhere else, I often have my mom or my friend on a standby in case William doesn’t cope with new places or people and it’s a silly thing to think I have to do but it is just one of those things.

I guess what I am trying to say is sometimes you have to take that leap of faith, whether that is faith in a person, an event or yourself. If you’re not willing to try then how will you ever experience new things, how can you write people off as not understanding your child if you’re not giving them the opportunity to do so. In a world of people that can be judgmental and cruel, there are still people who are kind and accepting, people who include our children without trying.

Inclusion is something we all crave, whether we like to admit it or not, it can be in conversation at the dinner table, inclusion in a game of football on the park or in our case it’s the inclusion into society or inclusion into people’s lives. Its something we can take for granted when we are neurotypical, I know before having William it wasn’t something I even thought about but now the thoughts can be all consuming.

Today’s post it to simply say, think about what you are doing, think about the child that you may class as a little odd, think about birthday parties and events, think about how you would feel to be excluded, then think about how it would feel if the sole reason behind it, was because of who you were; something you have no control over.

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Posted in Emotions

Tell me lies, tell me sweet little lies

Today’s topic of conversation inner turmoil is trust. I’m not sure why but its something thats been occupying my mind a lot recently and I thought that by writing about it, it may stop running around in my head rent free.

I think we have spoken about this before in many other posts but here we go again… Trust is a huge thing for me and many of you will know why, or at least have suspicions. I value truth above all else and it is something I live by, in many cases I can be too honest and it makes me a human version of marmite; people with either find it refreshing or irritating, love it or hate it, it’s just part of who I am unless it comes to William, I sometimes find it hard being honest when I need help and will just keep going, pretending all is fine and then will write on here about how hard it can be and people will reach out, why didn’t I ask for help? Sometimes it’s a pride thing, sometimes I think that if another mom can do it why can’t I, even though our children are very different. Any way I think I’m digressing from the subject at hand here…

In any relationship trust is one of the most important thigs whether it’s the trust between partners, the trust you have in the professionals and babysitters who look after your children, the trust between an employee and their employer and the trust your child has in you. Trust is something we have in many different variations, I have a trust in the battery on my laptop, that it won’t die on me whilst I am writing this. (Currently on 26% 🔋) My main thoughts today are what we do when that trust is broken, how we can overcome it? If we can overcome it? If my battery dies, I wont trust it to last next time its low and would bring my charger downstairs but what if it’s a person that breaks that trust?

A wise person told me that once trust is broken, any form of relationship will never be the same again. That’s not to say that things can’t be good again but just not the same and we can either accept that and try to move passed it or we can write off that person and make sure we are more guarded with the next.

Protecting yourself and your children from the pain that comes with deceit is important but is it possible to shield yourself too much? We have been let down by so many medical services, local authority departments and people that I wonder if we should ever trust someone in what they say again.

Trust isn’t just about lies but about the breaking of promises or failing do something you should do.

  • ‘The referral has gone through, Mrs Buckley’
  • ‘I know what I’m doing’
  • ‘I love you’
  • ‘He on the list of allocations Marie, I made sure of it’
  • ‘Your arse doesn’t look fat in those leggings’
  • ‘I’m not having an affair’
  • ‘It’s just a little needle, it doesn’t hurt’
  • ‘William will grow out of it’
  • ‘I’m ok’
  • ‘It’s fine’
  • ‘I’ve chased the referral’
  • ‘I understand how hard things are for you and I will help’
  • ‘I’ve just been for a drive’
  • ‘I can do it on my own’

And my favourite silent lie… a smile 🙂.

The list is pretty much endless, but how many lies is too many? When do you just walk away? When do you change doctors? Or professionals or cut people out that you can’t trust?

There are a few people in my life that I have implicitly trusted, even fewer in William’s life and it seems that I don’t really learn my lesson. I have misplaced faith in people that talk the talk but never back it up with anything of substance. People that tell me they are doing one thing but are really doing another and just try to placate me to stop an argument (that the truth would have prevented), to stop me legal action, or to mislead me into forgetting about my rights or prevent official complaints. I think the last few years has taught me to question everything and everyone, and I’m not sure if that’s the right thing to do.
Give people the opportunity to lie to you and if they don’t, it tells you something about their character or even their professional ethics but if they do… you have to make a decision. Was it a lie? Was it broken promise or a failure of duty? What ramifications did it have? Can you trust that person to continue in their usual capacity in your lives?

Can you forget about it? Can trust ever be fully rebuilt?

I guess that’s the big questions isn’t it?

P.s, My battery is at 9%

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Posted in Emotions

My own journey

8th January 2018

Look at this girl and analyse what you are seeing. A happy young mom holding her sleeping baby posing for her husband to take a photo… but that’s not whats really happening here.

It was my first day back at work after almost a year off. I woke up early, did my hair and make up to plaster over the cracks of how I was truly feeling.

I remember feeling relief as I left the house; like a huge weight was lifted off my shoulders. I could finally be away from William. My job has always been a constant in my life, since I was 17 so I felt like I was going back to do something I was really good at and since that wasn’t how I felt about being a mom, it made me really happy.

Only it wasn’t a relief, things had changed and people had left and I couldn’t focus on any one task. I was now part time and there weren’t enough hours in a day. I was constantly chasing my own tail. I remember coming home and faking excited to see William… I should have missed him. I held him close whilst he nodded off and had a little cry because ‘I missed him’ only I cried because I didnt. I cried for me. Not for him.

‘Take a picture Dave’ I don’t have many pictures of William and I over his first 2 years purely because I was alway the one behind the camera (This made post separation purging a nightmare🤣) I felt it was important to take a picture and prove that I was OK. That I was happy. Its silly isn’t it, that’s what this social media age has done to us. I think that’s why on here I try to be as honest and open as possible.

I’m not ashamed to say I was I was spiralling down a very dark hole and ended up at a stage I couldn’t see the light. I worried about my family dying when there was nothing wrong with them but the thought consumed me and kept me awake at night, I couldn’t cope with the changes is my career and found myself struggling to do the most simple of tasks but faking it with a smile and a cheery attitude. William was missing his milestones and I thought it was my fault, did I do something wrong during pregnancy? Was it because I didn’t love him enough? I began focusing on the fact that he might be taken away from me, social services would somehow get involved and take one look at me and know that it was my fault.

William was 18 months old and I had reached a point in which I felt like things would be better if I wasn’t around anymore by the time I sought help. I spoke to the doctor and just sobbed, I don’t know how he could possibly understand what I was saying but he listened and offered me help and I personally chose to be medicated, Sertraline to help with my depression and Propranolol for anxiety. It was hard, really hard and I came off them early and I wasn’t ready and soon spiraled back down that hole but I knew… I knew I wasn’t ready and went straight back to the doctor and this time when I thought I was ready, we slowly weaned off them and it worked.

For two years I have been off all medication and coping well. I have embraced that darkness I felt and can happily share my story. William is my word and the love I have for him was always there but was hidden by the storm clouds in my head. It didn’t flood in immediately but bit by bit as the clouds cleared, just like the sun does… it creeped through.

I know that Williams delays and medical issues are not my fault, that I did everything right when pregnant and that I loved him unconditionally from the moment I saw him on my scan and that even though I didn’t feel it, he did. He knew I loved him and still knows now.

There are days, even now in which I feel a darkness but speaking to people and being open about it really helps. This blog saved me as did all of you who read it, whether its ever post or just one. Each of you help me overcome every hurdle, every obstacle just by allowing me a platform to rant and cry about how I feel. Sometimes about myself or sometimes about the system that fails us.

Thank you and if anyone needs to talk please get in touch, with me, with a friend, a doctor. Don’t keep it to yourself. Darkness isn’t as lonely if you have someone by your side.🥰

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Posted in Brief updates, Dads Journey

Co-Parenting

Today’s topic of conversation is co-parenting. I wanted to do some research into the types of co-parenting, purely to make sure William’s dad and I are doing it right and hopefully improve upon it if necessary or make sure we are at least heading in the right direction.

There are 3 types of coparenting.

High conflict co-parenting

High conflict parenting is exactly as it sounds, it’s difficult for some to put personal reasons aside and focus on what’s best for the child. This is often the style used in the aftermath of a separation. This style of parenting can be detrimental to the child and makes it almost impossible for both parents to have equal say in the way in which a child is raised. Usually in high conflict parenting relationships one parents tries to maintain control of the child and their Ex, often being unable to make a courteous, decent, or even ethical choice for their child.
I read an article recently about the signs of High conflict parents and it is usually because one or both parents are narcissists, but this article was very informative on spotting the traits of the high conflict parent.

  • The blame is always on the other person, they themselves can do no wrong and often portray themselves as the victim.
  • They lie, they often don’t think of any repercussions or simply don’t care.
  • They seem to enjoy the conflict, relishing in the attention it brings them. Their behaviour can be classed as gaslighting, using your natural emotions against you to cause a reaction. It often means its their way or no way.
  • They use your child against you, refusing or restricting access. This may also include speaking poorly of the other parent in front of the child.

Parallel co-parenting

The most common type of coparenting is Parallel Co-parenting, this is usually when two parents are unable to communicate with each other but have learned to tolerate one and other but lead two separate parenting strategies with little to no discussion. It is possible to transition from high conflict to parallel co-parenting but can take lots of work from both parties and may result in legal mediation or court ordered access rules restricting the need for the parents to communicate.

Cooperative and collaborative co-parenting

Finally, we have the category that William’s dad and I seem to fall into. Learning how to co-parent is difficult but I don’t think we really had a choice, because of Williams additional needs, we had to make sure we were on the ball with it and singing from the same hymn sheet so to speak. This is the pinnacle of co-parenting and what all parents that are separated such be aiming towards. It’s kind of weird how when we were married, we couldn’t communicate but now we do it easily and without thinking. I would even say we have a sort of friendship (we won’t be having movie nights and braiding each others hair though 🤣) Our conversations are mainly about William but we can also ask how one and other are. He even went out of the way to have William so that I could recover from my shoulder injury and the flu. Don’t get me wrong both David and I would probably agree that it wasn’t easy to begin with but just short of a year on we have it running like clockwork. 🕒

I think with the way our marriage crashed and burned that it would have been easier to slip into high conflict and then just coast through parallel co-parenting, but we persevered, and it’s paid off because it was the right thing to do.

I guess what I’m trying to say here is that despite the past and any hurt, that we both consistently put William first, as any parent should, and I am grateful that we are able to do that. I remember my post announcing our split and how I wrote that we would be co-parenting, and that Williams dad would be involved in all decisions etc, but I don’t think I believed it at the time. Maybe writing it was a self-fulfilling prophecy?
Needless to say, I believe and always have done that both parents should have an equal say, rights and access to a child they helped produce and I am very proud of both myself and David for putting everything aside and working together to ensure Williams best interests are upheld and I hope we can continue to do so no matter what the future holds.

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Posted in Emotions

Non-Starter

Let’s have a moment of silence for all those moms that expected this week to be something it isn’t…

Let’s think of those parents whose children are starting mainstream schools; those parents who are scared that this isn’t the right environment for their child and the parents who know it isn’t the right environment for their child but whose hands were forced.

Let’s think of the parents like myself whose children are yet to be allocated a suitable school. Whose children are getting left behind.

But let’s also celebrate the parents of all the four-year-olds out there who are happily and successfully starting their school journey. I will like their first day pictures on Facebook and comment about how adorable and grown up they look, but it’s tinged with sadness on my part.

We are back at the stage of jealousy for me, the green-eyed monster has reared its ugly head…
‘Why isn’t that my child?’
‘Why do that child’s parents get all these experiences that I once dreamed of?’
‘What did I do wrong, and they do right?’

Its stupid to think that way and usually its easy to swat away those thoughts like flies but right now its hard. I think that’s because its everywhere, social media, supermarkets, TV. There is no escape from what this week is. Its the start of the school year! Whoop de fucking whoop!

I wanted to photograph William in my street as me and H were outside my mom’s, I wanted to take photos with next doors youngest girl as she is starting secondary school, both in their slightly big but immaculate uniforms on their first days…but that isn’t happening.

I was naive and booked this week off work, I’m not so why as we were no closer to William securing a suitable setting but I guess I will still hopeful (or still had my head in the sand who knows 🤷‍♀️) I envisioned walking him to school and meeting other parents, talking about how big our kids are and how they’ve grown up so fast, how it was only yesterday when they were still in nappies and toddling around. I feel hard done to, and I know how bad that sounds as William is such a beautiful child and I wouldn’t change him for the world, but right now I feel robbed. Robbed of the firsts in which I expected. Every day with William is wonderful but as his peers are growing up and moving on, he just isn’t. We are in the same place we were 2 years ago, nursery, nappies, messy mealtimes… don’t get me wrong, I do know and fully appreciate how far he has come in those two years but this week its hard.

My week off will now be dedicated to decorating, continuing the journey of turning my house into a home, something to keep me busy and my mind occupied as we follow the same routine we have for years. I’m so grateful that William’s nursery said they would keep him as long as possible, but that journey should have naturally ended now, and it hasn’t.

So again, let’s just take a moment for those moms whose week isn’t as expected, those who instead feel angry about it, disappointed, upset. Those moms who may spend this morning crying into their coffee, writing angrily at a laptop or smiling through the heartache or in some cases all three.

All my love to all moms out there, no matter the situation you are in this week 😘 M. x

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Posted in Events & Holidays

The Hobman Holiday

It was that time of year again, the annual family holiday. The stress, the anxiety, the tears and that’s just me whilst trying to pack our bags 🤣

It was a new beginning this year as it was a pureblood adventure, cheeky Harry potter reference there 😜 Mom and Dad, with their two kids Me and H and our two kids Kaylee and William.
each year our numbers have dwindled, my dad jokes that the holiday metaphorically kills people off… he was fearful for his life, if mom hasn’t got rid of him in over 40 years, i think he may be safe 😂 It sounds crazy but this was my favourite trip yet and we have being doing it since 2017. I climbed the ingleton waterfall walk whilst pregnant with William. If you haven’t done it, please check it out by clicking here as it is beautiful.

Just like last year William loved stream walking, last year we went slightly later in the year and he had to be fully clothed, warm and in wellies but this year I got him some aqua shoes from amazon which were amazing as it meant he could scramble over rocks in the water. Kaylee was brave and they both went in, in bare feet 😮 Nanna planned on keeping her feet dry but William had other ideas and dragged her in with him but me on the other hand was all in, as you can see my feet are full submerged… I was not wearing aqua shoes; my sketchers will never be the same!

Swimming in Ingletons outdoor pool is always a highlight for me and sadly last year it wasn’t open due to Covid but this year it had undergone a refurbishment and was open, we took full advantage and booked it privately. If you are in the area (maybe after the waterfall walk 😉) check it out, here’s the info. The pool is kept amazingly clean and has disabled changing facilities which made getting William ready and changed afterwards a dream. The staff as always were super friendly and helpful.
I worried about Williams bowel problems meaning we couldn’t swim as irs super difficult to find swim nappies in his size, I mean look at the issues we had with standard nappies 🙄 however there is website called splash about which sell specialised wetsuits without the specialised price. check it out here. William is modelling the ‘Jammer wetsuit in cobalt blue’ the website claims that this is the first and only wetsuit to provide faecal leak protection 💩 well I am not sure if that statement is true but it does work and for less than £30 you can’t go wrong! I will definitely be buying the next size up when it’s needed.
The blow up life vest was an absolute waste of £13, not including the link as I wouldn’t want anyone else to waste their money. It claims to be designed for children ages 3-6 years but was huge on William who is 4 and a half despite tightening the straps as far as they would go. I also deemed it unsafe as it kept tipping him upside down which meant he could have no independence in the water. To add insult to injury, the material was so thin that William bit through it within 15 minutes so it got abandoned in the pool bin.

I want to talk about something that happened after swimming when we went for a cream tea to celebrate H’s birthday, something that happens a lot… I would like to throw out that I do not currently have a blue parking badge for William but I have applied for one and until I receive it we are not eligible to park in disabled spaces so we don’t however it does make parking in standard size spaces a nightmare, we try to get into a mother and child space but these aren’t always available. The place we chose for our cream tea is divine but doesn’t have mother and child spaces  so we pulled into 2 spaces whilst we unloaded william, his pram and the essentials (there were numerous other spaces available) the reason we did this was to protect the cars on either side whilst we remove Wiliam from the car as it can be difficult and he often kicks the car door which can cause damage to our car and those around us. I will reiterate her that there were numerous other spaces available. A “gentleman” and I use that word ironically decided to pull up behind us and comment on our parking, baring in mind it was easy to see we were trying to remove William from the car. There was only myself, William and my Mom there at that point. Firstly the “gent” had no reason to comment as there were multiple spaces and I personally think we were doing the right thing. He also commented when he thought it was two women on their own but shit himself when my dad stepped in who was in a car travelling behind us. Comments like this are the reason I suffer with anxiety when taking William out in the car (Baring in mind that I don’t drive so rely on other people) making comments to women on their own can be intimidating and this guy blatantly wasn’t aware my dad was with us and I genuinely believe that had my dad been visible at the time of his comment that he wouldn’t have made it.
There are too many people in this world that think its ok to make judgemental comments about others without knowing the full facts, you read about it all the time in the papers. people leaving notes on cars in disabled bays because they don’t look disabled or people commenting as people with hidden disabilities use disabled toilets. Its crazy that people think this is acceptable!

William did so well with his walking whilst we were away and because the cottage was at the end of a lane in the middle of nowhere, he had the freedom to walk at his own pace and explore his surroundings, he struggles walking when he has to be controlled because of traffic or needing to be somewhere at a certain time which is why we have asked for a referral to wheelchair services to try and get funding towards his own adapted stroller, however this was sent in september last year and we are still chasing it now 🙄 Just like everything else he needs.
Picture one is so special, I know it may not look it but it genuinely brought tears to my eyes. During our walk I was tickling his neck with a piece of wheat and when I threw it away he picked another one and passed me it so I would tickle him more… he is doing so well with his object exchange.

Sleepwise wasn’t ideal whilst away, I was sharing a room with William which meant I couldn’t go to sleep until he was asleep and I have to wake up when he woke. Unfortunately on the Wednesday he didn’t go to sleep until the 3am and then on the Friday woke up at 3am so needless to say, I need a holiday to recover from my holiday haha. He found great comfort in his tablet whilst away which he sadly broke however thanks to Amazon’s no worry warranty, he has a free of charge replacement due any day now.

The holiday as a whole was hugely successful and William did so well with the changes to his routine, he loved being with all his family and as always took a huge shine to his grandad. We got a little wet going out for our evening meal which threw William a little out of sorts (third pic) however he soon came round and enjoyed his dinner.

I won a bad parent award as I had accidentally packed a small pack of nappies by mistake, thankfully I have Amazon prime and was able to get some to us, not next day as we were the middle of nowhere but within 2 days which is pretty bloody brilliant. I felt like I had gone back in time having to pay for them again… honestly I was so angry with myself and don’t know what I would have done had I not been able to get any 😥

It was really nice to have some much needed family time after a year and a half of lockdowns, isolation, shielding etc and I look forward to doing it so much more often 🥰

I have a little confession to make, I started dating… I’ve spoken on here about how I don’t know if I would ever be ready or how to introduce someone to William but it just sort of happened in the most natural way. He’s an amazing person and William immediately took to him and his daughter which is more than I could have ever asked for.

I share a lot on here about Williams journey and how I handle things (or sometimes dont), but this is private for now. It’s happening, I’m very happy, as is William and that is all that matters.

Much love 😘, M. x

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Posted in EHCP Process

The (EHC) plan that time forgot

There is still no update on the L.A finding him a suitable provision and they are well passed the 20 week timescale shown below, gratefully pinched from the Kids website 😊

28th October 2020 they confirmed all information was received.

9th December 2020 they confirmed William would be assessed for an EHCP – the last day of the timescale.

17th February 2021, they had up until this date to gather report and information. Reports were not gathered until the final two weeks of this deadline and his report from speech and language was not included despite this being his main area of need. (lets not forget that the specialized allocations were 15th February and I have been asking since the beginning of 2020 (February at the latest and kept getting told, we will start when… we will start after etc)

The draft should then have been issued at the end of this week. However, it was received 1st May 2021, almost 27 weeks after the confirmed they had received the request. I should have received my final copy and be done and dusted by that point but no, not in Hull 🙄

We are currently 41 weeks in and still no final copy despite multiple chases.

The local authority are currently over double the timeframe they should adhere to which is why we have no idea what your future education will look like. It’s a joke.

*Amendment*
On the 28th July I received a phone call from Williams new case worker, the illusive Richard day, I was beginning to feel like this man didn’t exist. The Local Authority is finally in full agreement that William needs a place within a specialised provision! we are currently unaware of where this will be but they are aiming to have a provision for April/May 2022. The overwhelming relief was amazing however due to the lies and misinformation we have been given in the past, I wont full believe it until they follow through on this.

My solicitor is submitting a complaint in regards to the timescales taken for the EHCP and we must await this document before we can decide whether we wish to proceed to a tribunal. I’m not looking for compensation (why take money from an already underfunded department?) but they need to know that what they are doing is legally and morally wrong.

I will keep you posted, M x 😘

Posted in Brief updates

Congraduations 🎓

It’s a bittersweet feeling when children of William’s age are moving on and he isn’t, on the 16th July he officially graduated from nursery, only he didn’t.

I’m looking at his little diploma now and it brings tears to my eyes thinking about it, I’m sad but I’m not sure if I am sad for William or for myself. It sad that he doesn’t get to start school with children his own age in September but then if we think about it, he isn’t like children his own age.

William doesn’t understand that he should be going to school so the more I think about it, the more I think about it the more I realise that I am sad for me, sad that I don’t have the excitement of a first day, meeting other mom’s in September, school uniforms and meeting teachers etc. I know it will come eventually but the delay just makes me feel like we are even more different from other children; i feel like its segregating us further.

On the other hand, it makes me really happy about how inclusive his nursery are and that even though he isn’t moving on, he got to graduate with his class. I am so grateful they are keeping him until the easter term; I honestly don’t know what I would have done if they had of said no.

A short and bittersweet update today, much love M 😘 x

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