Posted in Events & Holidays

Its our birthday! 🎈

And just like that, we turn 2 (well yesterday to be precise) 😊

It’s been a crazy 2 years, we’ve been read in 59 countries, we have 3 social media pages (links below), our story has been featured in online magazines, newspapers and other peoples blogs, there have been many ups and downs but sharing it with you all has made things so much easier and I am grateful to each and every one of our readers.

WORLD DOMINATION MAP

Here are the top 10 countries in which we are read in

  • United Kingdom 🇬🇧
  • USA 🇺🇸
  • Australia 🇦🇺
  • China 🇨🇳
  • Malta 🇲🇹
  • Ireland 🇮🇪
  • Spain 🇪🇸
  • Germany 🇩🇪
  • Canada 🇨🇦
  • Cambodia 🇰🇭

I think the best way to end our little celebratory post is to share our most popular posts in the last 2 years.

all our love 😘 M.x

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Posted in Brief updates

Divorce

🎶 And now, the end is near. And so, I face the final curtain…

Divorce is something I never thought would happen to me, it sounds silly, doesn’t it? But when I got married, like most people, I thought it would be forever despite any issues that may have arisen. I accept that It’s a little bit of an old-fashioned notion, but I came from a very happy home with two parents, and I always envisioned I would have the same kind of home for my future children.

I’ve tried to remain private about the split between William’s dad and I, until now… you won’t be getting the gory details so ft that’s what you think this post is about, then I am sorry (but not sorry) to disappoint you as only my mom and future therapist are privy to that bit of information.

William’s dad and I met as we had just reached adulthood, we met at a party just like most people did back then because Facebook had only just become a thing and tinder didn’t exist. Fast forward six years and we were married, three more and we had William, another three and we were separated, a now a year on, here we are divorced. I’m a little sad as I hold the papers in my hand, not because we are not together but because it’s not something I never thought I would do, and I feel it has ruined my thoughts on marriage because let’s face it, we don’t meet someone and think ‘gosh, you would make a great first husband’ I mean if that was going to be my intention, I would have at least married an old rich guy first, here’s looking at you Anna Nicole. 🤣

I was very grateful that at the end of our relationship, William didn’t have full understanding of what was going on, he knew things were changing and it destroyed his routine, but he wasn’t as aware as most kids his age would have been and although I am grateful, I do wonder if that was good for William or not. I spent months trying to keep William in some form of a routine and if it wasn’t for that I don’t think I would have gotten through it, it gave me a purpose, a focus. I mean it failed as it was seven months of hell, constant meltdowns, and shutdowns… he didn’t want me, he wanted his dad and that hurt, William cried, and I cried. Not for the same reasons but the same hurt non-the-less.

As time has gone on, things are much easier and we co-parent really well but as I have said before it hasn’t always been easy and we had to work on it, some days it’s not easy at all, as we are both very different people to the ones we had been when we met, when we got married and even when we separated. We just don’t really know each other anymore and that’s okay.
William has two parents who love and adore him, who would walk over glass to make sure he didn’t have to, and I guess I can’t really ask for any more than that… Do I regret marrying William’s dad? Not for a moment because I wouldn’t have William, or Rusty 🐾 I have never for a moment regretted having William. Do I regret placing so much trust in some one? Maybe. Has it made me more guarded? Yes, but that’s not necessarily a bad thing.

William’s dad is perfectly happy with his girlfriend, and they have William on set nights at their house, I can only hope that she takes on William as if he were her own, that she will love and care for him when he is with his dad. I guess that’s all we can hope for, isn’t it? That when or if our children’s other parent moves on, that their partner is willing to take on board our child. I wanted to continue hating her but how can I? my son comes back from their house, clean, healthy, and happy, and she has a part in that. So, I am grateful to her. The situation in which she came about doesn’t affect her ability to be a good substitute maternal figure when I’m not there or maybe even one day his stepmom. None of this makes me any less William’s mom, it just means there are more people in this world who love him and that can never really be a bad thing.

I’m not sure how William’s dad feels about my partner spending so much time with his son, but I do hope that he could talk to me about it, if there was an issue because I know it’s not easy to think of someone else stepping into that role when you’re not there, but you have to think of it from a point of positivity and not a jealousy or anger. I am grateful that I have found someone to share my life with, when I didn’t think I would trust anyone enough again, let alone so soon. I am grateful that my someone perfectly complements my personality, that we can just have fun with each other because I’m not going to lie, I had forgotten what fun was. He’s a brilliant dad to Little Miss and its wonderful to witness and to be allowed to be a part of. They have embraced William and I just as much as we have embraced them, and I hope that continues for a very long time.

I will file these papers tonight with all my paperwork and it will be done… and I’m glad, albeit a bit sad but it is time to draw a line under it. It’s nice in a way to know I am no longer someone’s wife, to be able to go to bed tonight, in the arms of my boyfriend and to simply be his girlfriend is something I have been looking forward to since we started dating.

So tonight, I am saying goodbye to Mrs Buckley… but you know what they say ‘a wife is only a wife until the end of the marriage, but an ex-wife is for life’ 🤣

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Posted in Emotions

Inclusion

Let’s talk about inclusion… as an adult, I can honestly say that I genuinely like my own company. It’s much harder to end up in an argument although not impossible. 🤣

We worry about our kids been included in the playground, getting invites for parties and things of the like but as a parent of a child with special needs inclusion is something we worry about for everything. Will I be able to navigate his adaptive stroller around that shop, do the disabled toilets have a suitable changing facility? Will that cafe or restaurant understand that he may be noisy and throw his food?

I feel uncomfortable in situations in which it is obvious that William is uncomfortable, it’s mainly because I still worry about what other people think and I’m not sure that will get go away but I hope it does.

I recently attended an event, or a gathering of sorts and I had the strangest experience, something that I have never experienced before; total all-encompassing inclusion and understanding. It sounds really strange to say this, but I have taken William to places that should have been safe for us, but they weren’t. I was terrified of doing a first new place/event, as I usually am because let’s face it, I can be the queen of anxiety and overthinking and believe me I had been doing a lot of it in the run up.  What if I William had a meltdown? What if people didn’t understand?

I panic about going to my parents or big nanna’s and they’re regular occurrences so its natural that I would panic about somewhere else, I often have my mom or my friend on a standby in case William doesn’t cope with new places or people and it’s a silly thing to think I have to do but it is just one of those things.

I guess what I am trying to say is sometimes you have to take that leap of faith, whether that is faith in a person, an event or yourself. If you’re not willing to try then how will you ever experience new things, how can you write people off as not understanding your child if you’re not giving them the opportunity to do so. In a world of people that can be judgmental and cruel, there are still people who are kind and accepting, people who include our children without trying.

Inclusion is something we all crave, whether we like to admit it or not, it can be in conversation at the dinner table, inclusion in a game of football on the park or in our case it’s the inclusion into society or inclusion into people’s lives. Its something we can take for granted when we are neurotypical, I know before having William it wasn’t something I even thought about but now the thoughts can be all consuming.

Today’s post it to simply say, think about what you are doing, think about the child that you may class as a little odd, think about birthday parties and events, think about how you would feel to be excluded, then think about how it would feel if the sole reason behind it, was because of who you were; something you have no control over.

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Posted in Brief updates

Lets have a catch up – November 2021

Do you know what I want, what I long for?

Its sounds terrible but I would love for William to call out for me in the night… ‘Mom. Mom. Mom’ for him to need me to help him get settled. For him to want to be in bed with me and find comfort in my arms.

I speak to other parents, some who say their child will not settle without them, some who relish in the closeness and some who refer to their children as a barnacle come bedtime 🤣 some tell me I’m lucky, but I don’t feel it. I have a child that on one hand doesn’t need me but on the other needs me more than children his age usually do.

William rarely reaches out for me for comfort or safety… he finds this himself by going to a safe place on his own and shutting down. This could be his bedroom, the armchair in my living room or his stroller but never in me. Are we right in the need we have in relation to our children? I suppose it all comes back to the expectations we hold based on other families and what we see on TV but my child isn’t like other children and he isn’t like Sheldon Cooper or Joe Hughes and sometimes I struggle to get passed that but on other occasions I embrace it.

Hull fair was here 🎢

I took William with the guy I am dating and his daughter (Little Miss)… we had initially planned to go on the Thursday which is our standing playdate but William was having a great day on the Saturday so we went early which worked out so well.
The fair was busy as it was its first weekend day but since we went for about 2pm, it wasn’t as busy as it would be later in the evening. Both children seemed to love it.

It was the best picture we were getting 😂

Sadly there weren’t really any rides that I felt William would be safe on to ride on his own but he most definitely enjoyed the food and the atmosphere.
I used Williams parking pass for the first time and it made things so much easier, we paid to park but used the disabled section which made getting William out of the car into his stroller really simple, purely because it removed an anxiety I usually have about potentially damaging someone’s car.

As we walked round the fair and watched Little Miss go on numerous rides, William was smiling and clapping his hands with joy. Granted its sometimes difficult to tell because of his face…

Happy face, I promise.

Believe it or not, William wasn’t possessed in this photo but was in fact super happy because he had visited the girls next door and claimed their bed 🤣
This was how he looked during our walk around the fair, this was only his second ever visit to the fair but he remembered the sugar doughnuts very well as you can see.

2019 v 2021

It’s a nice little tradition for me and William but one we can hopefully continue with Little Miss, we both enjoy the lights, music and food. Despite the anxiety that comes with it, it is most definitely worth it, and the highlight of our October before Halloween. I love Halloween, my dad used to turn the lights out and ignore the door much to my mom’s dismay, but I am the complete opposite; pumpkin out and little goodie bags for the kids. This year I had my little vampire to help me.

I want to suck your blood eat your candy

He wasn’t a fan of coming to the door with me but loved playing with the bubbles in his goodie bag and eating copious amounts of sweets. 🍬🍭

Williams Pica seems to have gotten worse and he is even more determined to eat his nappy, after a frantic phone call to 111 due to his poop being full of nappy crystals, I discovered they are none toxic and as long as he isn’t being blocked up by them, then he will be ok and based on previous issues, I am a pro at establishing if he is blocked up… I do not want to go through another regime to clear him out. 🤮 I’m a little lost regarding how I stop him eating it as he is soo determined. During the day I can run interference, but I cannot seem to stop him on a night, he has adaptive sleepsuits (these zip up in the back) and baby grows. I’ve even been putting a pair of boxers of the nappy to restrict access, but nothing seems to stop him, and I don’t feel like there is much support out there for this.

I chased up his school place only to be told there is no update, and they will let me know when they have one, but I won’t be fobbed of that easily and will be chasing each month after their allocation meetings going forwards. We will not be forgotten about. I also chased the sensory pathway referral as that has been a non-starter since it was mentioned in July and am awaiting an update.

William was back at the eye hospital last month for a check up and just like every other time, he didn’t cooperate, and they cannot dismiss him as a patient until they can conduct a full test…. They think all is good but don’t want to take any chances which is brilliant of them.

We have an upcoming paediatrician appointment next week and an impending review with Williams senco and nursery so I will make sure to keep you all posted on those.

No update on wheelchair services although William’s dad is chasing them; they initially offered us a wheelchair which isn’t practical for William, so we asked about a new adaptive stroller instead and are awaiting their decision. It only took a year after the referral to get this far 🙄

And finally, the dreaded DLA renewal has thumped onto my doormat, so I have lots of tears incoming due to how brutally honest you have to be, although you never know, it may be easier for me this time since I started sharing our journey… who knows 🤷‍♀️

All our love as always 😘, M. X

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Posted in Emotions

My own journey

8th January 2018

Look at this girl and analyse what you are seeing. A happy young mom holding her sleeping baby posing for her husband to take a photo… but that’s not whats really happening here.

It was my first day back at work after almost a year off. I woke up early, did my hair and make up to plaster over the cracks of how I was truly feeling.

I remember feeling relief as I left the house; like a huge weight was lifted off my shoulders. I could finally be away from William. My job has always been a constant in my life, since I was 17 so I felt like I was going back to do something I was really good at and since that wasn’t how I felt about being a mom, it made me really happy.

Only it wasn’t a relief, things had changed and people had left and I couldn’t focus on any one task. I was now part time and there weren’t enough hours in a day. I was constantly chasing my own tail. I remember coming home and faking excited to see William… I should have missed him. I held him close whilst he nodded off and had a little cry because ‘I missed him’ only I cried because I didnt. I cried for me. Not for him.

‘Take a picture Dave’ I don’t have many pictures of William and I over his first 2 years purely because I was alway the one behind the camera (This made post separation purging a nightmare🤣) I felt it was important to take a picture and prove that I was OK. That I was happy. Its silly isn’t it, that’s what this social media age has done to us. I think that’s why on here I try to be as honest and open as possible.

I’m not ashamed to say I was I was spiralling down a very dark hole and ended up at a stage I couldn’t see the light. I worried about my family dying when there was nothing wrong with them but the thought consumed me and kept me awake at night, I couldn’t cope with the changes is my career and found myself struggling to do the most simple of tasks but faking it with a smile and a cheery attitude. William was missing his milestones and I thought it was my fault, did I do something wrong during pregnancy? Was it because I didn’t love him enough? I began focusing on the fact that he might be taken away from me, social services would somehow get involved and take one look at me and know that it was my fault.

William was 18 months old and I had reached a point in which I felt like things would be better if I wasn’t around anymore by the time I sought help. I spoke to the doctor and just sobbed, I don’t know how he could possibly understand what I was saying but he listened and offered me help and I personally chose to be medicated, Sertraline to help with my depression and Propranolol for anxiety. It was hard, really hard and I came off them early and I wasn’t ready and soon spiraled back down that hole but I knew… I knew I wasn’t ready and went straight back to the doctor and this time when I thought I was ready, we slowly weaned off them and it worked.

For two years I have been off all medication and coping well. I have embraced that darkness I felt and can happily share my story. William is my word and the love I have for him was always there but was hidden by the storm clouds in my head. It didn’t flood in immediately but bit by bit as the clouds cleared, just like the sun does… it creeped through.

I know that Williams delays and medical issues are not my fault, that I did everything right when pregnant and that I loved him unconditionally from the moment I saw him on my scan and that even though I didn’t feel it, he did. He knew I loved him and still knows now.

There are days, even now in which I feel a darkness but speaking to people and being open about it really helps. This blog saved me as did all of you who read it, whether its ever post or just one. Each of you help me overcome every hurdle, every obstacle just by allowing me a platform to rant and cry about how I feel. Sometimes about myself or sometimes about the system that fails us.

Thank you and if anyone needs to talk please get in touch, with me, with a friend, a doctor. Don’t keep it to yourself. Darkness isn’t as lonely if you have someone by your side.🥰

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Posted in Emotions

The Fall Down

Autumn is my favourite seasons. The leaves change, Hull fair snacks are readily available 😋 Halloween 🎃, Bonfire night 🔥 and Christmas🎄 are right around the corner. I can almost smell the fire smoke in the air. It slowly becoming acceptable to put the heating on and to start wearing woolly tights and boots. The clocks will go back and dark cosy nights with candles, blankets and movies are just around the corner.

But then again, I hate this season in equal measures, some days it can’t decide if its summer still and its too hot but its raining and there is no physical way to be dressed appropriately and, in my opinion, it is cold and flu season…. Traditionally this falls between December and March but in my house, it always starts in the September.

In this new world in which we live, you can imagine the first thing that comes to mind when you start coughing and sneezing all over the place and genuinely looking like the walking dead 💀 I can handle being poorly, I don’t handle it well, but I handle it 😂 William being poorly is a whole different ball game. He can’t tell me what’s wrong, so it is a guessing game from the moment his behaviour changes until he develops full symptoms… is it tonsilitis? Stomach problems? The flu? The thought process gets pretty dark… what if its measles? Did I see spots? What if its Corona? Or Ebola? Or the plague? Or maybe, just maybe, it’s just a common cold.

I know my reasoning is pretty extreme, but my point is that it’s just never possible to tell what is causing the issue until the issue itself become apparent. William reacts to many situations by shutting down, this means he will withdraw from almost everything, he will barely eat and will try to sleep for avoidance. This could be because he doesn’t want to do something like leave the house or partake in a certain activity but could also be because I had to trim his nails, stopped him eating carpet fibres or didn’t let him smear the contents of his nappy. In some instance it’s because he doesn’t feel well. How do we know the difference? There is one simple answer… we don’t!

Its purely a guessing game… I have to evaluate everything that has happened prior to his shutdown and try to figure out. This means I have to be ultra-conscious of what happens on a day to basis and must be switched on at all times. This still means I have to try isolate what could be the problem and act appropriately, if in fact any action is necessary. On some occasions, no matter how much I analyse what has happened, I get it wrong and its simply because he is coming down with something but with no prevalent symptoms, it is impossible to know until it fully hits him.

I’m not going lie, sometimes it’s exhausting and sometimes when he cries, I cry but that’s ok because it doesn’t mean I’m a bad mom or a failure. It means I am trying my best and that’s all we as parents can hope for.

Despite this I do love Fall just not the downs that come with it 🍂 xx

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Posted in Brief updates, Dads Journey

Co-Parenting

Today’s topic of conversation is co-parenting. I wanted to do some research into the types of co-parenting, purely to make sure William’s dad and I are doing it right and hopefully improve upon it if necessary or make sure we are at least heading in the right direction.

There are 3 types of coparenting.

High conflict co-parenting

High conflict parenting is exactly as it sounds, it’s difficult for some to put personal reasons aside and focus on what’s best for the child. This is often the style used in the aftermath of a separation. This style of parenting can be detrimental to the child and makes it almost impossible for both parents to have equal say in the way in which a child is raised. Usually in high conflict parenting relationships one parents tries to maintain control of the child and their Ex, often being unable to make a courteous, decent, or even ethical choice for their child.
I read an article recently about the signs of High conflict parents and it is usually because one or both parents are narcissists, but this article was very informative on spotting the traits of the high conflict parent.

  • The blame is always on the other person, they themselves can do no wrong and often portray themselves as the victim.
  • They lie, they often don’t think of any repercussions or simply don’t care.
  • They seem to enjoy the conflict, relishing in the attention it brings them. Their behaviour can be classed as gaslighting, using your natural emotions against you to cause a reaction. It often means its their way or no way.
  • They use your child against you, refusing or restricting access. This may also include speaking poorly of the other parent in front of the child.

Parallel co-parenting

The most common type of coparenting is Parallel Co-parenting, this is usually when two parents are unable to communicate with each other but have learned to tolerate one and other but lead two separate parenting strategies with little to no discussion. It is possible to transition from high conflict to parallel co-parenting but can take lots of work from both parties and may result in legal mediation or court ordered access rules restricting the need for the parents to communicate.

Cooperative and collaborative co-parenting

Finally, we have the category that William’s dad and I seem to fall into. Learning how to co-parent is difficult but I don’t think we really had a choice, because of Williams additional needs, we had to make sure we were on the ball with it and singing from the same hymn sheet so to speak. This is the pinnacle of co-parenting and what all parents that are separated such be aiming towards. It’s kind of weird how when we were married, we couldn’t communicate but now we do it easily and without thinking. I would even say we have a sort of friendship (we won’t be having movie nights and braiding each others hair though 🤣) Our conversations are mainly about William but we can also ask how one and other are. He even went out of the way to have William so that I could recover from my shoulder injury and the flu. Don’t get me wrong both David and I would probably agree that it wasn’t easy to begin with but just short of a year on we have it running like clockwork. 🕒

I think with the way our marriage crashed and burned that it would have been easier to slip into high conflict and then just coast through parallel co-parenting, but we persevered, and it’s paid off because it was the right thing to do.

I guess what I’m trying to say here is that despite the past and any hurt, that we both consistently put William first, as any parent should, and I am grateful that we are able to do that. I remember my post announcing our split and how I wrote that we would be co-parenting, and that Williams dad would be involved in all decisions etc, but I don’t think I believed it at the time. Maybe writing it was a self-fulfilling prophecy?
Needless to say, I believe and always have done that both parents should have an equal say, rights and access to a child they helped produce and I am very proud of both myself and David for putting everything aside and working together to ensure Williams best interests are upheld and I hope we can continue to do so no matter what the future holds.

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Posted in Emotions

Non-Starter

Let’s have a moment of silence for all those moms that expected this week to be something it isn’t…

Let’s think of those parents whose children are starting mainstream schools; those parents who are scared that this isn’t the right environment for their child and the parents who know it isn’t the right environment for their child but whose hands were forced.

Let’s think of the parents like myself whose children are yet to be allocated a suitable school. Whose children are getting left behind.

But let’s also celebrate the parents of all the four-year-olds out there who are happily and successfully starting their school journey. I will like their first day pictures on Facebook and comment about how adorable and grown up they look, but it’s tinged with sadness on my part.

We are back at the stage of jealousy for me, the green-eyed monster has reared its ugly head…
‘Why isn’t that my child?’
‘Why do that child’s parents get all these experiences that I once dreamed of?’
‘What did I do wrong, and they do right?’

Its stupid to think that way and usually its easy to swat away those thoughts like flies but right now its hard. I think that’s because its everywhere, social media, supermarkets, TV. There is no escape from what this week is. Its the start of the school year! Whoop de fucking whoop!

I wanted to photograph William in my street as me and H were outside my mom’s, I wanted to take photos with next doors youngest girl as she is starting secondary school, both in their slightly big but immaculate uniforms on their first days…but that isn’t happening.

I was naive and booked this week off work, I’m not so why as we were no closer to William securing a suitable setting but I guess I will still hopeful (or still had my head in the sand who knows 🤷‍♀️) I envisioned walking him to school and meeting other parents, talking about how big our kids are and how they’ve grown up so fast, how it was only yesterday when they were still in nappies and toddling around. I feel hard done to, and I know how bad that sounds as William is such a beautiful child and I wouldn’t change him for the world, but right now I feel robbed. Robbed of the firsts in which I expected. Every day with William is wonderful but as his peers are growing up and moving on, he just isn’t. We are in the same place we were 2 years ago, nursery, nappies, messy mealtimes… don’t get me wrong, I do know and fully appreciate how far he has come in those two years but this week its hard.

My week off will now be dedicated to decorating, continuing the journey of turning my house into a home, something to keep me busy and my mind occupied as we follow the same routine we have for years. I’m so grateful that William’s nursery said they would keep him as long as possible, but that journey should have naturally ended now, and it hasn’t.

So again, let’s just take a moment for those moms whose week isn’t as expected, those who instead feel angry about it, disappointed, upset. Those moms who may spend this morning crying into their coffee, writing angrily at a laptop or smiling through the heartache or in some cases all three.

All my love to all moms out there, no matter the situation you are in this week 😘 M. x

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Posted in Open Letters

A letter to my son

William,

1578 days, that is how long I have loved you, and that isn’t including the time I grew you inside of me, but I assure you; I loved you just as much then as I do now.
I have spent a total of 8 nights away from you, that’s only 0.5% of your life but from Saturday and until you start school, we will spend 28.5% of the week apart.

I would never have said a year ago, that I would be awake all night trying to comprehend these figures and telling myself that its going to be ok, that you will ok without me, that I will be ok without you.

I’ve spent almost 10 months thinking about how badly I need some time, ‘a break’ so to speak but I just wanted your dad to do his share because for the first four months through no fault of my own, you hated me. I could feel it and believe me, I didn’t like myself very much either at that point, but we got through it. The change in your routine blew everything apart, you struggled to eat, you lashed out and broke things, you cried, and I was beginning to think you didn’t know what sleep was but after 122 days; you slept. You slept in my arms after hitting me and yourself, but you slept, and it was a breakthrough or maybe a breakdown but you slowly got on board with your new routine and life got easier for both of us.

And here we are now, we have a good routine in place which is about to change once again and I don’t think either of us are ready for it but it has to happen.
I never wanted you to have two ‘part-time’ parents, two houses or any of the other things that comes with separation. I wanted stability for you, I know how much you need that but somethings are beyond our control, but I tried and I want you to know that, I tried… for you.

What if you need me and I’m not there? What if you seek me for comfort in a strange new environment and I’m not there? I cant always be there but I wish I could and I needed you to know this. You maybe don’t understand this now but when you are older and can maybe read this you will.

You are without a doubt, the best thing that’s ever happened to me, my greatest achievement and the love of my life. I wouldn’t be the person I am today had I not had you and I am forever grateful for you and everything you are.

I love you in the morning and in the afternoon, I love you in the evening and underneath the moon 🌙

Posted in Brief updates

Let’s have a catch up – May 2021

I have a little notebook that comes with me to all of williams meetings, I use this same notebook to jot down ideas of posts if something has happened or if I am feeling in a sharing mood. Quite often these ideas and thoughts don’t come into fruition so I thought I would put together a little catch up post of all the things I have yet to fill you in on.

So here is a little summary of what is to be included in this piece.
* William’s birthday
* School allocations
* Nappy service
* Impaction
* Big Nan

Williams 4th Birthday!

How is my little 8.8lbs baby now a four year old?! I swear to god I have just blinked and missed a few years. I’m sure I am not the only parent who feels this way but it seems like time has flown by. I can’t be really surprised as we are dealing with school allocations and that doesn’t happen until they reach this age but holy shit he is now 4!!!

I got some funny looks and questions when people asked me how we would be celebrating his birthday. As many people know William struggles should his routine change drastically so my plan for his birthday was to ignore it… not completely but to protect the main structure of his routine. He woke up the morning of his birthday like any other Monday. His dad came to do the nursery run and the house remained as normal. No sign of birthday regalia at all.
He ate his breakfast and went to nursery in his amazing birthday T Shirt (one of many 🥰) made by his Auntie Debs.
We sent a Curly Caterpillar cake from Tesco for him and his friends to share in the sunshine room. No one tell M&S! #FREECUTHBERT 🐛
Whilst he was at nursery his dad (yes we are still coparenting) and I set up the living room with his gifts, card and balloons for him to come home to. I even cooked him his favorite tea which was a full roast dinner with all the trimmings! We had decided to celebrate after nursery so the change to his routine wouldn’t throw out his full day and cause his potential upset at nursery and although people thought it was mean, we found it actually worked really well for William and is something we will look at doing going forward. He came home, explored the living room, picked his favourite new toys and then ate his dinner. It was lovely to see him so calm.

Presents this year were amazing as our friends and family understand suitability and what William classes as high interest. I think the most amazing surprise was a handmade busy board from his uncle Jim. William immediate fell in love with all the fiddly bits and it has sat in the living room ever since for him to play with.
Every year I usually make William a cake but this year I purchased a premade ‘Hey Duggee’ cake and as you can see he was quite happy with it and ate too many pieces to count 🍰🍰🍰🍰 although I made sure his dad and I got at least one piece each.
We had a few nice doorstep visits from friends and family which really made the day special as we hadn’t seen them in such a long time. #covidsucks

School Allocations

I have written a lot about allocations in other posts and on our social media pages but I just wanted to include a little summary of what has happened so far…

  • February 15th – William was not considered for a special school place but may be considered during the moderation for his EHCP (highly unlikely)
  • March 2nd – Moderating should have taken place but didn’t 🙄
  • March 15th – Moderation went a head and no special school place given.
  • April 16th – Mainstream allocations released.

William did not get into his first choice of mainstream school… because why would he. They like to make things as hard as possible after all!

I now have to follow the appeal process which is due in on 21st May. This shouldn’t matter as I should be able to name our chosen school on his EHCP but the SENCO advised we should go ahead with appeal to cover all our bases. This doesn’t fill me with confidence when the system has let us down so many times already 😥

The Nappy Service

As I have mentioned previously the nappy service is available for children who have reached the age of four which meant that when William needed them they were unavailable to him until he turned 4. We were incredibly lucky because the amazing Essity stepped in and provided us with nappies until the service could be applied for. This saved us hundreds of pounds and lot of stress and we are so grateful for their help in what felt like a time we were forgotten about and fell into one of the many gaps in the system.

On Williams birthday his health visitor put the referral across and we now have the service in place, first delivery pending. The only issue I encountered once we were referred to this service was that we had been sent a certain nappy which was a type the service also use, ideally i wanted to remain on these as I knew the sizing and the fact they could hold up to Williams movements etc but apparently its a bit of a postcode lottery and because we are not in the East Riding we are not eligible for that brand 🙄 I’m not even sure why that matters but aparently it does.

The lady that called me was brilliant, she understood I was working and may have to dip in and out of the call. She went through many questions with me and it was actually a pleasure to speak to her but what really made things better for me about how I was feeling as a parent was this message…

I needed this and it made me cry 😭

Impaction

Warning this is about poo! 💩

One thing that came to light recently as a follow on from the nappy service call was that William may have an impaction in his bowels, we are unsure if this is just nature or if it is due to the many things he eats which are not food. I mean it was only the other day his dad had to pull carpet fibres out of his bum 🤢 I’m so glad that was on one of his dads days 🤣

They believe his problems going to toilet are not just because of a lazy bowel but because there is an impaction which hasn’t cleared and everything else is adding to it or coming around it.

We have been given additional Movicol and Laxido to try and help it clear but, if it doesn’t i’m not sure what will happen next other than the fact we have to go back to the doctors to check what our options are.

I am trying not to google or freak out but this is me after all so check back in shortly and I may be weeping at my desk!

Return of The Big Nanna

184 days… 184 long days!
297 days in total… almost a quarter of Williams life without his Big Nanna.

I don’t know how soulmates work, I thought I did but their bond proves me wrong completely; she is 91 and he is 4 and they just light each other up. Big nan is suddenly young again and William is suddenly capable of interacting on a much higher level, he sees her and I mean really sees her. He finds comfort in his Big nanna just like I did in her when I was a child. To him, she is home, safety, love and lots of snacks.

Family 🥰

She has had her vaccines and as lockdown is lifting, things can slowly get back to normal and our normal is seeing Big nanna every Sunday for snacks and snuggles.

I should be back on top of posting now so I will hopefully be back to post more regularly going forward.
As always please remember to subscribe down below.
Much Love M. x

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