Posted in Events & Holidays

Peppa Pig Live – 23/07/2022

I despise Peppa Pig, in fact I think in my last post that I referred to her as a talking piece of bacon but lets be serious… she is an absolute brat but… the kids love her 🙄

Let’s put it this way, Peppa Pig Live was not exactly on my bucket list but William’s Aunty Debbie was kind enough to get us all tickets. She’s really good like that, tries to push me out of my comfort zone whilst be ridiculously nice haha. I would never have gone, not just because she needs to be in a sandwich but because I would have been so anxious about how william would react and if it would be too much for him but after our successful beach trip, I was all in.

I love our little blended family and this was the first big event other than Hull Fair that we have been to like this, so that added pressure maybe didn’t help my anxiety but despite this I was actually really excited.

The performance was in Bridlington at the Spa, starting at 10am so it meant we had to be fully on it in the morning to get everything in the car, the kids fed and sorted etc. Since the performance was in Bridlington we took advantage of being at the beach and the fact the weather was going to be nice and decided to make a full day of it so the car was pretty full with beach toys, blankets, picnic, the works.

A stressed but happy family at 8am 🥰

The drive down was easy, both kids were happy sat in their car seats as we sang along (badly) to cheesy music. It honestly felt like we arrived within seconds rather than 45 minutes.

So now onto some bad points… have you ever tried to find disabled parking in Bridlington? There is a place near the Spa but it seems to always be full. there are no sign posts indicating disabled parking anywhere. We parked at the harbour an managed to get a spot that had extra room to be able to get Williams chair out of the car, this wasn’t a disabled bay, just a lucky find.

Let’s talk about toilets, anyone with a child or a person that needs assistance in changing them will know that some disabled toilets are just not suitable. Imagine my surprise to find these… ‘South Cliff Gardens Public Convenience’
For the first time in forever, I remembered to take Williams Radar key and I am so glad I did… I’m not sure if I am overreacting but I feel like I have hit the jackpot for fully accessible toilets.
Handrails, space for moving a chair with a large turning circle, sharps/hazardous waste bins, adjustable electric changing table, in perfect working order and a fully working electrical hoist system. I was honestly amazed and had to take some photos (once I had changed William obviously) All the equipment was clean and worked perfectly. If you do visit bridlington and are in need of an accessible bathroom then I would highly recommend this one! 🏆

We made our way to the Spa with plenty of time to collect our tickets, I had called them in advance (a few times🤣) to ensure they had a wheelchair space available for us. I would hate to have to disappoint the kids if it wasn’t accessible to us once we had arrived. The staff had reserved us the wheelchair space and 3 accompanying seats in advance which meant there was no hustle and bustle once we had arrived. The spaces were in a perfect location meaning that we had full visibility of the performance but were also away from the bulk of attendees which I think helped William acclimatise to the noise. I think if the performance had been full then he may not have coped as well.

The show started and William was a little upset however he soon realised that he wasn’t been tortured (although I was 🤣) and that it was actually something enjoyable for him. He laughed, he clapped and ate all the snacks. He love it, as did Little Miss who was singing, dancing and joining in with interactive songs and I will only ever admit this once but it wasn’t actually that bad. The show focused more on a human rather than Peppa which made it bearable. I would even go as far as to say that I would take the kids again… Why wouldn’t we want to go when they both loved it so much?

We are back onto the conversation about toilets, the show was about an hour and twenty minutes with a mid way interval. They sold Mr Moos ice cream so Liam & Little Miss grabbed us some whilst I took William to the toilets. The disabled facilities where also baby change facilities which meant there was a large queue with it being a children’s performance. I understand when places need to do this but somewhere as large as Bridlington Spa should be able to have separate facilities or incorporate baby changing into the mens and womens toilets (because let’s face it, men change bums too but yet places tend to put the facilities into only the women’s! 😡)

The toilet was tiny, the first picture was taken with my back against the closed door, the second from the same location as the changing table was in sort of a recess.
The changing table was not suitable for William, It was not built to hold his weight… I thought I was passed having to change Williams bum on a dirty toilet floor, sadly I was wrong. If you aren’t going to have fully accessible toilets (handrails do not make you fully accessible!) then at least have a clean fucking floor! 🤢

The kids fleeced us for merchandise, Little Miss got a glittery pink tote bag and Will;ster got the Mr Dinosaur soft toy which was a massive success. I mean they were super expensive but worth every penny. The venue isn’t daft as they place the merch stand in a place that is unavoidable upon entering or leaving the performance and even had a gent who stood at the from of the stage before the show, advertising the toys. It may put some parents in a horrid situation in which they maybe can’t afford to buy their children these items in which they are having waved in front of their faces. Young children don’t understand that money isn’t always readily available.

Once the performance was over we headed off for lunch and went to the Stirling Castle. Little Miss had a cheeseburger kids meal and William had a sunday dinner, both of them did really well with their food and they were perfect portions for children. The pub itself was very accomodating, lots of space to navigate the chair, no overcrowding and patient staff who didn’t scoff when William started throwing his chicken on the floor, I do pick it up though. I didn’t check out the toilets but I would still highly recommend them for a quick lunch. Pricewise I think it was good too, about £35 for 2 adult meals, 2 kids meals and 4 drinks.

Then time to get sand between our toes, we grabbed our picnic stuff, beach wear and found a good spot on the beach. William immediately tried to run off into the sea. I think I upset him a little since I stopped him in order to change his clothes but once he was sorted he was off. Little Miss was a bit more patient and was happy playing in the sand rather than wanting to swim out to sea. Liam took William as far out as he could, William was laughing and splashing the entire time, then Little Miss was ready to go for dip. William had a bit of a shutdown at this point, I’m not sure if it because he was cold, the sensory aspect of wet sand, clothes etc or maybe he just wanted to be back in the water but he picked his usual position…

He reached out for my hand and stayed there for quite a while just blocking out the world (I think we all wish we had that ability and I would class it as a superpower.🦸‍♂️), once Little Miss was out of the sea, she decided to comfort him and stroke his back. I have the most adorable video but I am unable to share it as my video editing skills aren’t very good and wasn’t able to hide her face. She did something similar not too long ago and I shared a small post and photo to our facebook page. Check it out by clicking here. Kids are so amazing in the way they just assess emotions and react.

Our final little bit of excitement before heading home was on a search for seafood, ice cream and donuts. William got his sugared donuts that he usually has at Hull Fair but I think the excitement was too much for him by this point and he maybe only had one small bite at a push. Liam searched for a dinosaur shaped ice cream (George had one in Peppa Pig 🙄) as that was all Little Miss wanted but nowhere sold anything like that so he fobbed her off with mint chocolate chip claiming it was ice cream that dinosaurs eat, he’s lucky it worked to be honest although he did end up wearing most of it as she was sat on his shoulders eating it and it was everywhere 🤣🍦 I am definitely my dads daughter and got myself some welks and a lobster tail which I imagine would have been really nice but a seagull decided it would be nice too, so hit me in the head and took the lot 😫🦅 I manned it out though, waited until I was out of the crowd before whinging about it and asking Liam if it had pooped in my hair. I know I have a big forehead but its not big enought to be a landing strip for birds!

The journey home wasn’t as fun as the journey there, Little Miss was fast asleep within seconds of her being in the car and William decided it was the perfect time try and eat as much of his nappy as humanly possible. We had to do an emergency pull over on someone’s drive to sort him out… It was the most stressful 15 minutes of the day, having nowhere to pull over and knowing I couldn’t do anything to stop him but it was all new for us so we will remember this next time and make sure he is more restricted in his clothes because there will be a next time… We must be gluttons for punishment. Paw Patrol Live here we come! Plus another day out at the beach with the full Hobman clan! 😲😜

ItemScore
Parking5/10
(It is available but there isn’t much of it and it’s not well signposted)
Bridlington Spa5/10
(Customer care & seats would make it a 10/10 but the toilet situation would be a 0/10)
Peppa Pig Live10/10
(Highly recommend for young kids or those with special needs.)
The Beach8/10
(Very clean but not too accessible, had to walk quite far for a ramp to go down with the chair)
Stirling Castle7/10
(Food good but not great, price reasonable and pub clean.)
Company 10/10
(Is there anything better than spending a day with your family?)
Seagulls0/10
(They owe me a fiver for the seafood! Flying B*****ds!)

I would take a 100 seagulls to the head to have more amazing days as a family, we might not all be blood but history has shown it doesn’t really matter. Much Love, M.x

Get new rants delivered directly to your inbox.

Please remember to check us out, and follow us on our social media pages 🙂

Facebook – https://www.facebook.com/ourjourneyontothespectrum
Instagram – https://www.instagram.com/ourjourneyontothespectrum/
Twitter – https://twitter.com/OurJOTS

Posted in Events & Holidays

Overcautious

I don’t think I have taken William to the beach in at least 3 years, when we think about covid, it must have been summer 2019, that means William was only 2 when we first went to the beach which sadly was the last time until recently.
Back in 2019 he loved it, we struggled to keep him out of the water even as it got colder. For a child that at the time hated having a bath, he loved the sea.

Riding the waves with Auntie Nelen & Kaylee 2019 x

So much has changed since that photo. I was worried it would be a huge sensory overload for him and it made me anxious about it, but it was one of those situations in which I wasn’t just worried about how William would handle it but how I would handle William and I’m not sure which I was more fearful about, and I think that makes me a bit selfish and sometimes it takes a while for me to put that aside. I am only human after all. 🤷‍♀️ I do wonder how many other things that I have been so worried about, that its stopped me from actually experiencing them or letting William experience them. As a natural worrier, I don’t think this will ever stop but as long as I take a breath, things will eventually become clearer in my mind and I will suck it up and leap into new experiences.

Well we took that leap, We had taken Little Miss on an impromptu beach visit and felt we should do the same for William. The thought of it gave me that feeling you get in your stomach, the one in which you aren’t sure if your scared, nervous, excited or about to shit yourself. 💩

We took Williams blue badge so we could secure a parking spot with enough space to safely put him in his wheelchair which was also close to places of interest for him. First stop was obviously fish and chips, because are you even at the beach if you don’t get some and since we visited Hornsea, it had to be Sullivans 🤤 William was a little picky but demolished his chips and battered sausage (Insert comment here from my dad🤣) after a bit of coercion and alot of my curry sauce.

We then walked along the front burning off our food and desperately trying to avoid the little black beetles that seem to be out in force this year 🙄 Getting his chair on to the sand was a bit of a nightmare as we had to find a sloped entrance, pushing it across the sand took strength I didn’t know I had 💪 As soon as he was out of his chair, he was straight in the water. If I hadn’t have stopped him, it would have been a lot more than just a paddle but he absolutely loved it. I worried that the smell, sound and textures would be too overwhelming for him but he took it all in his stride and absolutely surprised astounded me. I think sometimes I am guilty of underestimating him, in fact I know I am guilty of it as this isn’t the first time I have been proven to be overcautious.

We ended our day with a cheeky trip to Mr Moos ice cream place, I had never been before but Williams uncle Jim had told us a few times about how good it was. Liam and I had what I would class as ‘Fat Bastard’ desserts, they were huge but got eaten 🤣 and since William doesn’t really like ice cream, he had a huge piece of cake and seemed to thoroughly enjoy trying to feed himself with a spoon, there wasn’t a crumb left on his plate.

As you can see he was truly exhausted after our little adventure and we are very much looking forward to our next one… Peppa Pig Live! Something I never thought I would do, Mainly because I hate that little bratty talking piece of bacon but also because I wasn’t sure how William would take to it but if we don’t try it we will never know!
I will keep you posted on how it goes as it’s a big thing for our little blended family but I’m sure it won’t be our last adventure.

Much love, M 😘x

Get new rants delivered directly to your inbox.

Please remember to check us out, and follow us on our social media pages 🙂

Facebook – https://www.facebook.com/ourjourneyontothespectrum
Instagram – https://www.instagram.com/ourjourneyontothespectrum/
Twitter – https://twitter.com/OurJOTS

Posted in Brief updates

Lets have a catch up – November 2021

Do you know what I want, what I long for?

Its sounds terrible but I would love for William to call out for me in the night… ‘Mom. Mom. Mom’ for him to need me to help him get settled. For him to want to be in bed with me and find comfort in my arms.

I speak to other parents, some who say their child will not settle without them, some who relish in the closeness and some who refer to their children as a barnacle come bedtime 🤣 some tell me I’m lucky, but I don’t feel it. I have a child that on one hand doesn’t need me but on the other needs me more than children his age usually do.

William rarely reaches out for me for comfort or safety… he finds this himself by going to a safe place on his own and shutting down. This could be his bedroom, the armchair in my living room or his stroller but never in me. Are we right in the need we have in relation to our children? I suppose it all comes back to the expectations we hold based on other families and what we see on TV but my child isn’t like other children and he isn’t like Sheldon Cooper or Joe Hughes and sometimes I struggle to get passed that but on other occasions I embrace it.

Hull fair was here 🎢

I took William with the guy I am dating and his daughter (Little Miss)… we had initially planned to go on the Thursday which is our standing playdate but William was having a great day on the Saturday so we went early which worked out so well.
The fair was busy as it was its first weekend day but since we went for about 2pm, it wasn’t as busy as it would be later in the evening. Both children seemed to love it.

It was the best picture we were getting 😂

Sadly there weren’t really any rides that I felt William would be safe on to ride on his own but he most definitely enjoyed the food and the atmosphere.
I used Williams parking pass for the first time and it made things so much easier, we paid to park but used the disabled section which made getting William out of the car into his stroller really simple, purely because it removed an anxiety I usually have about potentially damaging someone’s car.

As we walked round the fair and watched Little Miss go on numerous rides, William was smiling and clapping his hands with joy. Granted its sometimes difficult to tell because of his face…

Happy face, I promise.

Believe it or not, William wasn’t possessed in this photo but was in fact super happy because he had visited the girls next door and claimed their bed 🤣
This was how he looked during our walk around the fair, this was only his second ever visit to the fair but he remembered the sugar doughnuts very well as you can see.

2019 v 2021

It’s a nice little tradition for me and William but one we can hopefully continue with Little Miss, we both enjoy the lights, music and food. Despite the anxiety that comes with it, it is most definitely worth it, and the highlight of our October before Halloween. I love Halloween, my dad used to turn the lights out and ignore the door much to my mom’s dismay, but I am the complete opposite; pumpkin out and little goodie bags for the kids. This year I had my little vampire to help me.

I want to suck your blood eat your candy

He wasn’t a fan of coming to the door with me but loved playing with the bubbles in his goodie bag and eating copious amounts of sweets. 🍬🍭

Williams Pica seems to have gotten worse and he is even more determined to eat his nappy, after a frantic phone call to 111 due to his poop being full of nappy crystals, I discovered they are none toxic and as long as he isn’t being blocked up by them, then he will be ok and based on previous issues, I am a pro at establishing if he is blocked up… I do not want to go through another regime to clear him out. 🤮 I’m a little lost regarding how I stop him eating it as he is soo determined. During the day I can run interference, but I cannot seem to stop him on a night, he has adaptive sleepsuits (these zip up in the back) and baby grows. I’ve even been putting a pair of boxers of the nappy to restrict access, but nothing seems to stop him, and I don’t feel like there is much support out there for this.

I chased up his school place only to be told there is no update, and they will let me know when they have one, but I won’t be fobbed of that easily and will be chasing each month after their allocation meetings going forwards. We will not be forgotten about. I also chased the sensory pathway referral as that has been a non-starter since it was mentioned in July and am awaiting an update.

William was back at the eye hospital last month for a check up and just like every other time, he didn’t cooperate, and they cannot dismiss him as a patient until they can conduct a full test…. They think all is good but don’t want to take any chances which is brilliant of them.

We have an upcoming paediatrician appointment next week and an impending review with Williams senco and nursery so I will make sure to keep you all posted on those.

No update on wheelchair services although William’s dad is chasing them; they initially offered us a wheelchair which isn’t practical for William, so we asked about a new adaptive stroller instead and are awaiting their decision. It only took a year after the referral to get this far 🙄

And finally, the dreaded DLA renewal has thumped onto my doormat, so I have lots of tears incoming due to how brutally honest you have to be, although you never know, it may be easier for me this time since I started sharing our journey… who knows 🤷‍♀️

All our love as always 😘, M. X

Get new rants delivered directly to your inbox.

Please remember to check us out, and follow us on our social media pages 🙂

Facebook – https://www.facebook.com/ourjourneyontothespectrum
Instagram – https://www.instagram.com/ourjourneyontothespectrum/
Twitter – https://twitter.com/OurJOTS

Posted in Events & Holidays

The Hobman Holiday

It was that time of year again, the annual family holiday. The stress, the anxiety, the tears and that’s just me whilst trying to pack our bags 🤣

It was a new beginning this year as it was a pureblood adventure, cheeky Harry potter reference there 😜 Mom and Dad, with their two kids Me and H and our two kids Kaylee and William.
each year our numbers have dwindled, my dad jokes that the holiday metaphorically kills people off… he was fearful for his life, if mom hasn’t got rid of him in over 40 years, i think he may be safe 😂 It sounds crazy but this was my favourite trip yet and we have being doing it since 2017. I climbed the ingleton waterfall walk whilst pregnant with William. If you haven’t done it, please check it out by clicking here as it is beautiful.

Just like last year William loved stream walking, last year we went slightly later in the year and he had to be fully clothed, warm and in wellies but this year I got him some aqua shoes from amazon which were amazing as it meant he could scramble over rocks in the water. Kaylee was brave and they both went in, in bare feet 😮 Nanna planned on keeping her feet dry but William had other ideas and dragged her in with him but me on the other hand was all in, as you can see my feet are full submerged… I was not wearing aqua shoes; my sketchers will never be the same!

Swimming in Ingletons outdoor pool is always a highlight for me and sadly last year it wasn’t open due to Covid but this year it had undergone a refurbishment and was open, we took full advantage and booked it privately. If you are in the area (maybe after the waterfall walk 😉) check it out, here’s the info. The pool is kept amazingly clean and has disabled changing facilities which made getting William ready and changed afterwards a dream. The staff as always were super friendly and helpful.
I worried about Williams bowel problems meaning we couldn’t swim as irs super difficult to find swim nappies in his size, I mean look at the issues we had with standard nappies 🙄 however there is website called splash about which sell specialised wetsuits without the specialised price. check it out here. William is modelling the ‘Jammer wetsuit in cobalt blue’ the website claims that this is the first and only wetsuit to provide faecal leak protection 💩 well I am not sure if that statement is true but it does work and for less than £30 you can’t go wrong! I will definitely be buying the next size up when it’s needed.
The blow up life vest was an absolute waste of £13, not including the link as I wouldn’t want anyone else to waste their money. It claims to be designed for children ages 3-6 years but was huge on William who is 4 and a half despite tightening the straps as far as they would go. I also deemed it unsafe as it kept tipping him upside down which meant he could have no independence in the water. To add insult to injury, the material was so thin that William bit through it within 15 minutes so it got abandoned in the pool bin.

I want to talk about something that happened after swimming when we went for a cream tea to celebrate H’s birthday, something that happens a lot… I would like to throw out that I do not currently have a blue parking badge for William but I have applied for one and until I receive it we are not eligible to park in disabled spaces so we don’t however it does make parking in standard size spaces a nightmare, we try to get into a mother and child space but these aren’t always available. The place we chose for our cream tea is divine but doesn’t have mother and child spaces  so we pulled into 2 spaces whilst we unloaded william, his pram and the essentials (there were numerous other spaces available) the reason we did this was to protect the cars on either side whilst we remove Wiliam from the car as it can be difficult and he often kicks the car door which can cause damage to our car and those around us. I will reiterate her that there were numerous other spaces available. A “gentleman” and I use that word ironically decided to pull up behind us and comment on our parking, baring in mind it was easy to see we were trying to remove William from the car. There was only myself, William and my Mom there at that point. Firstly the “gent” had no reason to comment as there were multiple spaces and I personally think we were doing the right thing. He also commented when he thought it was two women on their own but shit himself when my dad stepped in who was in a car travelling behind us. Comments like this are the reason I suffer with anxiety when taking William out in the car (Baring in mind that I don’t drive so rely on other people) making comments to women on their own can be intimidating and this guy blatantly wasn’t aware my dad was with us and I genuinely believe that had my dad been visible at the time of his comment that he wouldn’t have made it.
There are too many people in this world that think its ok to make judgemental comments about others without knowing the full facts, you read about it all the time in the papers. people leaving notes on cars in disabled bays because they don’t look disabled or people commenting as people with hidden disabilities use disabled toilets. Its crazy that people think this is acceptable!

William did so well with his walking whilst we were away and because the cottage was at the end of a lane in the middle of nowhere, he had the freedom to walk at his own pace and explore his surroundings, he struggles walking when he has to be controlled because of traffic or needing to be somewhere at a certain time which is why we have asked for a referral to wheelchair services to try and get funding towards his own adapted stroller, however this was sent in september last year and we are still chasing it now 🙄 Just like everything else he needs.
Picture one is so special, I know it may not look it but it genuinely brought tears to my eyes. During our walk I was tickling his neck with a piece of wheat and when I threw it away he picked another one and passed me it so I would tickle him more… he is doing so well with his object exchange.

Sleepwise wasn’t ideal whilst away, I was sharing a room with William which meant I couldn’t go to sleep until he was asleep and I have to wake up when he woke. Unfortunately on the Wednesday he didn’t go to sleep until the 3am and then on the Friday woke up at 3am so needless to say, I need a holiday to recover from my holiday haha. He found great comfort in his tablet whilst away which he sadly broke however thanks to Amazon’s no worry warranty, he has a free of charge replacement due any day now.

The holiday as a whole was hugely successful and William did so well with the changes to his routine, he loved being with all his family and as always took a huge shine to his grandad. We got a little wet going out for our evening meal which threw William a little out of sorts (third pic) however he soon came round and enjoyed his dinner.

I won a bad parent award as I had accidentally packed a small pack of nappies by mistake, thankfully I have Amazon prime and was able to get some to us, not next day as we were the middle of nowhere but within 2 days which is pretty bloody brilliant. I felt like I had gone back in time having to pay for them again… honestly I was so angry with myself and don’t know what I would have done had I not been able to get any 😥

It was really nice to have some much needed family time after a year and a half of lockdowns, isolation, shielding etc and I look forward to doing it so much more often 🥰

I have a little confession to make, I started dating… I’ve spoken on here about how I don’t know if I would ever be ready or how to introduce someone to William but it just sort of happened in the most natural way. He’s an amazing person and William immediately took to him and his daughter which is more than I could have ever asked for.

I share a lot on here about Williams journey and how I handle things (or sometimes dont), but this is private for now. It’s happening, I’m very happy, as is William and that is all that matters.

Much love 😘, M. x

Get new rants delivered directly to your inbox.

Please remember to check us out, and follow us on our social media pages 🙂

Facebook – https://www.facebook.com/ourjourneyontothespectrum
Instagram – https://www.instagram.com/ourjourneyontothespectrum/
Twitter – https://twitter.com/OurJOTS