Posted in school

Sports day

When I think about sports days when I was a child, I think about playing football, buying tickets on the tombola, a table selling sweets, having a ticket to get my pre-chosen burger or hotdog 🌭 and running races against my classmates. As the token fat kid, I never came first but apparently according to Miss Daybell it was the taking part that counted 🙄

Liam and I went to the same primary school so this week as we have counted down to Williams first sports day, we have enjoyed reminiscing about our childhood and our sports days, our favourite teachers and activities. Sadly Williams dad and his partner couldn’t make it but there will always be next year.

I’m not sure what I expected Williams sports day to be like. I only had my own to compare it to and it wasn’t like that at all. I guess comparing sports day from a mainstream 90s primary and a specialist modern primary wasn’t a good idea but I do find it hard to stop myself. I guess I just expected more structure.

Now don’t get me wrong, I really enjoyed it and it was lovely to be able to spend sometime with him in his school environment and see all the children in his class. I wanted to get to know the kids he spends 5 days a week with and hopefully understand more about William and how he interacts with them but sadly William showed me that he doesn’t really interact with them at all. He showed no interest in any of his peers at all. In fact he wasn’t really interested in me and was more interested in rough and tumble play with Liam.

Sports day dance session.

The kids moved from activity to activity and each one was utter carnage but in the best way. They were just being themselves, William collected the cones (In lieu of a net) during Volleyball, other children were pulling the curtains back and forth, one kept turning out the lights and it was great to see that they have that freedom to enjoy themselves rather than restrained by curriculum or harsh rules.

Playing Volleyball aka collecting cones 🤣

I guess the one thing that hasn’t changed since the sports days of my youth is that the heavens opened up and the remainder of the sports day was cancelled 🌧

Get new rants delivered directly to your inbox.

Please remember to check us out, and follow us on our social media pages 🙂

Facebook – https://www.facebook.com/ourjourneyontothespectrum
Instagram – https://www.instagram.com/ourjourneyontothespectrum/
Twitter – https://twitter.com/OurJOTS

Posted in school, Uncategorized

26/04/2022

I would like to take this opportunity to apologise for the fact I haven’t written a post in a while but last week was a big week for us and a very emotional one. I felt that it wasn’t the right time to do any kind of writing so that I could process that William had finally gone to school.

I had been very honest about how I was feeling in relation to William going to school and had taken some time off to come to terms with this big adjustment and to be there for William every step of the way.

I’ll kick this off by sharing some photos of his first day, we came together as a family (as we should) to be there for William on his first day, I think it was more of a big deal to us than it was William.

26/04/2022
26/04/2022
26/04/2022
Proud mommy – 26/04/2022
William and his daddy- 26/04/2022

William was an absolute superstar, he was so excited to get on the bus and start his educational journey. He loves travelling so choosing to send him on transport was most definitely the right option… well the only option since I don’t drive myself (although driving lessons are now booked 😬🚘) but even when I do, or if I do, I think I will still send him on the bus as he’s made a friend and it’s so good for him to have that 1 on 1 social interaction although today he did get moved this week because he was eating the little boys coat 🤣 Pica at its finest.

I’m not going to lie and say I wasn’t a mess on his first day, second day and so on but seeing his face as he got on the bus was so fulfilling that I genuinely forgot about all my own fears and doubts, my own insecurities just fizzled a little. His face, full of confidence and joy made me feel worthwhile as a mother. I have done a bloody good job so far and now his teachers can continue with his education and help him develop and I will continue to help turn him into the lovely little boy he is and the amazing man he will grow to be.

I’m sat here at 11.47am on a Thursday, my house is clean and I have the time to sit and write this, watch some TV and just breathe… it’s an odd feeling but not the horrendous one I thought it would be. I’m not breaking down or feeling sorry for myself. My little boy is growing up and starting a journey in which he should have started last year. its hard when he doesn’t want to get off the bus on a night because i have this little voice that goes ‘he doesn’t need you now’ but that’s not true. We always need our parents. I’m in my thirties and still need my mom to tell me everything will be ok. William needs me, just not as much as he did before but i’m ok with that… we need to let our kids go so that they can fly and he is doing that.

We have this whole new support network in his teachers and his passengers assistant on the bus who is amazing and so lovely. She called me a few times the first week to let me know how he was on the bus as she saw I was upset. His teachers email me updates and there is an app in which they upload photos and comments. They have their first parents opening soon for the queen’s jubilee in which they will do a parade around the school, sadly I can’t attend but Williams dad will be going to support him.

I’m excited and nervous to see how school will help him develop but it’s a whole new chapter and i’m excited to start sharing it with you all. Much love, M. xx

Get new rants delivered directly to your inbox.

Please remember to check us out, and follow us on our social media pages 🙂

Facebook – https://www.facebook.com/ourjourneyontothespectrum
Instagram – https://www.instagram.com/ourjourneyontothespectrum/
Twitter – https://twitter.com/OurJOTS

Posted in Emotions, school

Wet Hands

Do you ever have a nightmare that feels so real that you can’t shake that feeling of dread that it gives you afterwards. I’ve been feeling down recently, getting lost in my own negative thoughts about myself and I think that’s maybe why I had such a terrible dream. Please feel free to skip the next paragraph if you would rather not read about it in detail as it is about a sensitive subject but I think it gives some context to the way I feel.

Click here to read the dream Every night before bed, I check on William and then go to bed myself, I often jump out of bed to make sure I definitely shut the baby gate. He’s not confident with stairs and who knows what mischief he could get up to… I woke up and could hear William laughing to himself in his room, if it’s early and he sounds happy then I usually check him on the baby monitor and go back to sleep until my alarm wakes me up at a reasonable hour, however when I awoke it was much later than it should have been, my phone had died and that meant my alarm didn’t go off… even at this point the dream felt so real and I remembered reaching for the charger and my glasses. I grabbed my dirty (clean really but that well-worn that it looks gross) grey dressing gown and pulled open my bedroom door. Williams baby gate was wide open and he wasn’t in his room. I must have taken the stairs 3 at a time, the living room baby gate was open. I couldn’t hear him so thought he had maybe fallen asleep. He was nowhere to be seen, I checked behind the sofa and chair, in the dog bed and under the table but he wasn’t there. the kitchen door was slightly ajar and although the kitchen baby gate was pulled shut, it wasn’t locked in to place. I called out for him, ‘William?’ ‘Willster?’ ‘baby?’ nothing… I sensed this awful feeling; knowing the bathroom was the only place I hadn’t checked. I walked in and the bath was full (I always empty it in real life), his toys were in there and so was he, he was wearing the t-shirt he had been wearing that day, a blue Toy Story one with a sequin panel…. only he wasn’t playing with it, instead he was under the water, face down and still. I started screaming and pulled him out of the water, he was cold. Then I woke up with what I am almost sure was a scream. My hands felt wet, not just sweaty but truly wet as if they had in fact been in the water. There were tears rolling down my face. I had never jumped out of bed so quickly in my life, Williams baby gate was closed and I struggled to open it as I was shaking so badly. There he was, snoring, safely in his bed surrounded by his squishmallows. In that moment, I didn’t care what time it was or that he was sound asleep. I grabbed him and held him tight, tighter than ever before.

I’m a worrier and we all know that, I’m insecure in my parenting and always second guess myself but despite me not being a ‘natural parent’ as I like to call them, I have worked bloody hard at it over the last 5 years and that recently it dawned on me that in what is now 9 days, William will be going to school. I am confident in my choice of school and super happy that I fought so hard to get him there but I’m having a wobble about who I am right now or at least who I will be when he isn’t here with me. I will never not be is mom but I am wondering (panicking) about what I will do on the days he is at school and I aren’t working… I already feel a bit useless, so many battles and fights to get him what he needs and his education was the biggest one, now he has what he needs, what is my purpose?
It sounds silly but without something to fight, I feel a bit redundant and worry that when he goes to school that I won’t be able to shake that feeling and it will just grow and consume me. It stupid because I know there are loads more things in wHich I will have to fight against for him as he grows older but this was ‘the one’

I think the dream was maybe a manifestation of how I feel about being without William when someone else is looking after him on what should be my days. Dreams about losing a child are apparently about grief, the grief you feel when a child moves from one phase in their life another which makes sense in these circumstances. My life has revolved around William since the moment I started trying for a baby, he didn’t even exist but he was my everything and he always will be, but I fear that I will feel so lost without him here with me… how crazy is that? Desperate to get him into school, desperate for some ‘me’ time and now I have it, I’m scared of it. I think it’s a bit like imposter syndrome, scared that i spent so long being this warrior that now I just have to be me, thats its not good enough.

It’s a strange one to be so worried about isn’t it… What would you do when all your dreams come true? well me personally have a full on anxiety attack and question who I am as a person. Most people would have a glass of bubbly and celebrate but no, I can’t do that. I have to take things to the extreme as always.

I have a fair few things I want to do, like decorate the last few rooms of the house and start my Understanding Autism Level 3 and Challenging Behaviour level 2 qualifications but is that enough? who knows?

I’m not sure what the point of my post is but just needed to get it off my chest and hopefully out of my head.

Get new rants delivered directly to your inbox.

Please remember to check us out, and follow us on our social media pages 🙂

Facebook – https://www.facebook.com/ourjourneyontothespectrum
Instagram – https://www.instagram.com/ourjourneyontothespectrum/
Twitter – https://twitter.com/OurJOTS

Posted in school

Self doubt

I had a moment last Wednesday night… and when I say a moment I mean that I didn’t sleep through worry (or maybe it’s this cold 🤧)

I worry alot so this may not seem unusual but this was different, this wasn’t necessarily my usual kind of worry. This was more self doubt. I had fought to get William the right education for what feels like eternity, we got the school we chose but I started to panic that I was wrong. What If it wasn’t the right decision. What If I had fought so hard for the wrong thing.

This hadn’t come our of no where, it was because Williams dad and I were taking to his new school the following day and I had become immersed in this overwhelming fear that I was wrong. I can only compare it to one other feeling I had had previously and that was when I was pregnant, I was terrified that when I went for my first scan, there would be nothing there. It was that same kind of feeling! I spoke to other people about the scan feeling and I’m most definitely not the only one and I imagine my doubt about the school wasn’t just something I experienced but last Wednesday night I felt alone in my fear.

The Thursday morning was just as bad, whether is was the cold, my bad shoulder, the lack of sleep or the worry… maybe even a combination of all three but I didn’t stay still, I couldn’t eat or focus on anything other than watching the clock waiting for the time I needed to meet William and his dad. Let’s just put it this way… the saying is right. A watched clock does go slower. ⏰️

I had spoken to Williams teachers via email a few times over the last few weeks but it’s not the same as meeting face to face. The moment we arrived at the school, they put me at ease. They didn’t just fall in to SEN teaching, they are there because they are passionate about it, because its not just a job to them but a vocation. They know every child from noises they makr in the other room, from tiny footsteps or a stray sock on the floor. Other parents had given me glowing reports about the teachers too which all made sense once i met them. William immediately connected with them and just left us to go and spend time with his new classmates. I knew as soon as he did that, that all the worry was for nothing. It was 100% the right decision for William and I was right to fight so hard for it.

The school itself is perfection. Everything is laid out perfectly, there is structure to everything and more visuals than you can possibly imagine. It’s so accommodating for children like William. I would love to say I held it together but we all know that would be a lie. I sobbed at how perfect it was for Williams education, the fact that he will travel through the school and be safe and in the right environment until he turns 19 just gave me this overwhelming sense of relief and in a big headed way a sense of accomplishment. I did that. I fought and I acheived it. All the worry was gone and I felt proud of myself.

27 days. That’s all he has left until he joins his classmates and I can not wait. I’m so excited for him to be in an environment that will be so beneficial to his development.

Uniform all ready 🥰

It’s been a long time coming but it will be here in the blink of an eye and as confident as I feel about it, I know that come that date in April I will be an absolute mess.

Get new rants delivered directly to your inbox.

Please remember to check us out, and follow us on our social media pages 🙂

Facebook – https://www.facebook.com/ourjourneyontothespectrum
Instagram – https://www.instagram.com/ourjourneyontothespectrum/
Twitter – https://twitter.com/OurJOTS