Today was THE DAY!!! well almost…
William’s referral to the ASD panel will be put through by his Speech and Language therapist. We need to sign our consent on the 10th February when she goes to observe him at nursery and then it’s done. Then we wait for the confirmation letter and the countdown begins ⏱
Today, like most important days didn’t start well. Anxiety at peak and the woman from speech and language hasn’t turned up and it was almost 30 minutes passed our home visit time.
Just like my last Tesco order she had gone to our old address 🤣 She called and was super apologetic but her paper file hadn’t been updated but she was on her way.
So Sally (writing her name so I remember it in the future) arrived and jumped in straight away, As soon as she sat down William went to her and grabbed her hands to play ’round and round the garden’ which was a positive sign as he doesn’t often take to new people in that way especially when he’s been poorly. Sunday morning wake up call was to a gunky case of conjunctivitis and a bust lip? Not sure how that happened but he didn’t wake us up when it did.
She asked a lot of the same questions as the Neurodevelopmental Paediatrician did but had a warm way about her that made them less judgemental and abrupt. In between questions she was playing with William as he wouldn’t leave her alone.
This wasn’t the type of appointment in which someone walks in and goes ‘right then Mr & Mrs Buckley, William will definitely start talking soon!’
This was the beginning of a very long process. There is no magic wand to wave to poof things into happening or to speed up William’s development and we’re ok with that as long as things are moving in the right direction and that he is happy.
Sally is sending us on a course ran by 2 speech and language specialists who will help up know how to appropriately encourage William to make more eye contact. She mentioned that usually his SEN worker would go along but believes Val has already had it based on the work she has done with William so far however will send her too if needed. There is a few month waiting list for this so it’s another letter we will be waiting to hit the doormat but we are good with that as we know its coming.
she will the check back in with us to see what the next steps are in developing his communication whether it’s BSL, Makaton on the Pecs system. The goal isn’t necessary to get William to start speaking but to enable him to communicate with us in a way he is comfortable with with which make things easier for us all in the long run.
Don’t get me wrong I would kill to have William call me ‘Mummy’ or tell me he loves me but he already does that in his own ways. Like on the rare occasion when he’s tired and comes to cuddle me and moves my hand so I know he wants me to stroke his hair.
hours minutes seconds
It’s Officially The Day
William has several appointments and assessments in the pipeline including an evaluation by IPass who are going to assess him movement to rule out any physical disabilities.
The next TAF meeting is in February so hopefully this will get the ball rolling further in regards to his education and an EHCP plan.
Big progress with Williams fine motor skills and his hand eye coordination and it’s all happened in such a short time.
He has now done the following for the first times…
* slotted a disc into a small hole
* used a fork to scoop, stab and feed
* built a lego tower with me
* scribbled independently on his whiteboard ➡ Future Picasso according to his Nanna